QUINN

Quinn was a breech baby, 8 lbs, 14.5 oz. who was delivered via C-section on November 19, 1999, 2 weeks early. His head was in the 98th+ percentile, and was charted by the pediatrician for length, etc. At his one week ck-up a CT Scan was scheduled to rule out Craniosynostosis. He did not have craniosynostosis, in fact his sagittal suture was almost two finger widths apart.

He lay looking only right or left unless a towel or mini-boppy was placed under his neck.

The neurosurgeon we saw for a consultation when Quinn was 4 weeks old did not recommend surgery, but he didn't have any other therapies to offer if nature didn't correct his shape. We had to go back in 3 months. In that time I did my own research, and found a correction device that I thought might work. I took the information with me to the next visit. Even though he had 2 patients with asymmetrical head shape who used the DOC band, he did not know that Cranial Technologies, Inc. made a band for scaphocephalic head shape. He has not been involved much with Quinn's treatment, besides writing the letter of medical necessity, and seeing him once during the therapy.

Quinn was in the DOC band about 4 and 1/2 months. Even though he started solids at the same time, ate and slept well and was never sick, he only gained 2 lbs. in the time we did treatment. It is possible had he undergone
a growth spurt we would have seen more correction (however our "target" areas were corrected enough to not pursue longer treatment, and his head is now in the "normal" scaphocephalic range for length).

I would have much preferred learning about this stuff through our pediatrician (she just had never seen anything like this) or the neurosurgeon instead of the Internet, but I am SO glad that the resources were out here for us to read and learn and make informed choices.

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©Craniosynostosis And Positional Plagiocephaly Support, Inc.2001