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Cappskids Support > Craniosynostosis (Moderated by: CAPPSORG, Max's Mommy)     Forum Posts Threads Last Post NEW MEMBERS/INTRODUCTIONS New to the site please introduce yourself and let us know what brought you here and what we can do to help!! This is also a place to post your cranio story to share with others. Every members journey is inspiring and a learning experience. We enjoy 1183 183 07-25-2010 07:27 PM by Christina   CAPPSORG, Max's Mommy Family Stories/Blogs/Websites/Videos Please start a new thread with your childs name for each new story. Post your Video - Blog - websites and stories here 23 18 05-11-2010 08:52 AM by teesphoto   CAPPSORG, Max's Mommy EVERYTHING CRANIO This section is for all talk Cranio related 4834 739 08-13-2010 01:38 PM by keppem01   CAPPSORG, Max's Mommy Surgery Dates Add your surgery info: Name - date - place - type of surgery - doctors - suture type 358 30 02-20-2010 12:29 AM by gazalar   CAPPSORG, Max's Mommy SURGICAL TEAM/STATE Please list your surgeon by thread - use a new thread and make the state the title and then add the NS and PS and contact info. Add duplicates under the same thread. This will be a great resource to new members. My hope is to have a "go to" surgeon 137 48 05-21-2010 07:09 PM by BlessedMamma3   CAPPSORG, Max's Mommy I want to be a SPONSOR Please add your name and contact information(email address) if you are able to sponsor a family for an upcoming surgery 32 11 05-03-2010 06:34 AM by cathontour   CAPPSORG, Max's Mommy I would like a sponsor for our upcoming surgery Post your info here - date of surgery/contact info (email address) - you will be contacted shortly. 38 13 04-06-2010 09:08 PM by teesphoto   CAPPSORG, Max's Mommy Cranio Cuties Here we can share pictures and videos of our little "cranio cuties" 248 41 04-27-2010 03:33 PM by mommyto3angels   CAPPSORG, Max's Mommy Prayers and well wishes Post your prayers and well wishes for our cranio families and their upcoming surgery 72 19 12-03-2009 10:49 AM by OHmetopicmom   CAPPSORG, Max's Mommy Endoscopic Surgery Chat A place to discuss this less invasive surgery option. 29 6 06-30-2009 10:34 PM by mjonesy37   CAPPSORG, Max's Mommy Spring Mediated Cranioplasty Here is a special place for our "Spring Cranio babies". learn more about this great surgical option here 764 63 08-10-2010 03:53 PM by Mason's Mom   CAPPSORG, Max's Mommy Metopic Suture Talk with others dealing with Metopic Cranio 1732 249 08-03-2010 03:18 PM by huntersmom2010   CAPPSORG, Max's Mommy Diagnosed Mild Metopic with no surgery recommended Post here to compare stories and opinions - see what options are out there and to talk to others who are dealing with the same diagnosis. 53 5 11-09-2009 02:16 PM by dannlark   CAPPSORG, Max's Mommy Sagittal Suture Talk with others that are dealing wtih Saggital Cranio 650 94 08-27-2010 11:41 PM by GAVINSMOMANN   CAPPSORG, Max's Mommy Coronal Suture Talk with others that are dealing with Coronal Cranio 446 60 07-03-2010 10:01 PM by Christina   CAPPSORG, Max's Mommy Lambdoid Cranio Talk with others who are dealing with Lamdboid Cranio 42 8 04-03-2010 07:05 PM by Courtsmom   CAPPSORG, Max's Mommy Syndrome Related Cranio Talk with others who are dealing with Syndrome related Cranio 17 9 11-30-2009 11:31 PM by danni174   CAPPSORG, Max's Mommy Crouzon syndrome Crouzon Syndrome is a condition resulting from premature fusion of the sutures of the skull and deformity of the skull. Characteristics include: skull is prematurely fused and unable to grow normally (craniosynostosis) bulging wide-set eyes d 1 1 10-04-2009 12:54 AM by Georgette   CAPPSORG, Max's Mommy Saethre-Chotzen Syndrome Saethre-Chotzen Syndrome is a very rare disorder characterized by the following traits: fusion of the cranial structures which sometimes produces an asymmetric head and face low-set hairline droopy eyelids (ptosis) and/or widely spaced eyes 1 1 10-04-2009 01:07 AM by Georgette   CAPPSORG, Max's Mommy Muenke syndrome Muenke Syndrome, also known as FGFR3-related craniosynostosis,[1] is a human specific condition characterized by the premature closure of certain bones of the skull during development, which affects the shape of the head and face. Muenke syndrome occ 2 1 09-18-2008 03:03 PM by Max's Mommy   CAPPSORG, Max's Mommy Apert Syndrome Apert Syndrome is a condition involving distortions of the head and face and webbing of the hands and feet. Characteristics include: skull - short from back to front, wide on the sides, and overly tall (craniosynostosis) eyes - slightly side-spa 1 1 10-04-2009 01:15 AM by Georgette   CAPPSORG, Max's Mommy Jackson-Weiss Syndrome Jackson-Weiss syndrome (JWS) is a genetic disorder characterized by foot abnormalities and the premature fusion of certain bones of the skull (craniosynostosis), which prevents further growth of the skull and affects the shape of the head and face. 0 0 Never CAPPSORG, Max's Mommy Cranio Surgery Help Have questions about surgery? Post here. 853 106 06-26-2010 10:36 PM by Janae   CAPPSORG, Max's Mommy Articles and Research studies/clinical trials Check for new research articles/publications. Also clinical trials and research will be listed here. Please post any relevant articles here. 37 14 10-23-2009 10:09 PM by Georgette   CAPPSORG, Max's Mommy Doctor Question and Answers This is a place for you to leave a question and we will get one of our doctors to answer and we will post the answer on the thread, please do not add a comment ona thread already with a question. 73 17 02-12-2010 12:32 PM by Sean-Luc mama   CAPPSORG, Max's Mommy Special Education and Advocacy A place to discuss what your child maybe dealing with due to the Cranio and what some of you may be doing to advocate for your child. 19 4 04-26-2009 11:07 AM by Max's Mommy   CAPPSORG, Max's Mommy Multi-Sutural Cranio Talk with others who are dealing with Multi-Sutural Cranio 20 6 06-18-2009 02:40 PM by mrsjoh   CAPPSORG, Max's Mommy Cranio Without Surgery Talk to others who have Cranio children who have not had surgery. 48 3 10-13-2009 02:29 PM by saradee   CAPPSORG, Max's Mommy Cranio Polls 126 5 07-23-2010 11:48 AM by HeavenlyMarie   CAPPSORG, Max's Mommy Cranio Archives This is the VAULT! Here is all of our older posts - threads and discussions - READ UP! View only forum. 0 0 Never CAPPSORG, Max's Mommy THE CHATTER BOX (Off topic) Anything goes here - just a place to chit chat - cranio or non-cranio related - this is a place to vent to! 76 17 04-10-2010 06:58 PM by teesphoto   CAPPSORG, Max's Mommy Forum Jump: Please select one: -------------------- Private Messages User Control Panel Who's Online Search Forums Forums Home -------------------- Craniosynostosis-- NEW MEMBERS/INTRODUCTIONS-- Family Stories/Blogs/Websites/Videos-- EVERYTHING CRANIO-- Surgery Dates-- SURGICAL TEAM/STATE-- I want to be a SPONSOR-- I would like a sponsor for our upcoming surgery-- Cranio Cuties-- Prayers and well wishes-- Endoscopic Surgery Chat-- Spring Mediated Cranioplasty-- Metopic Suture---- Diagnosed Mild Metopic with no surgery recommended-- Sagittal Suture-- Coronal Suture-- Lambdoid Cranio-- Syndrome Related Cranio---- Crouzon syndrome---- Saethre-Chotzen Syndrome---- Muenke syndrome---- Apert Syndrome---- Jackson-Weiss Syndrome-- Cranio Surgery Help-- Articles and Research studies/clinical trials-- Doctor Question and Answers-- Special Education and Advocacy-- Multi-Sutural Cranio-- Cranio Without Surgery-- Cranio Polls-- Cranio Archives-- THE CHATTER BOX (Off topic) Positional Plagiocephaly-- General Plagio Chat-- Welcome to CAPPS and the Plagio Board-- Band/Helmet Help-- Repositioning Help-- Plagio Insurance Help-- Plagio Polls-- Plagio Archives General Area-- Off Topic Polls Search this Forum: All times are GMT -5 hours. 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