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Cappskids Support > Craniosynostosis > Special Education and Advocacy > Learning Disablilty

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ThreeOfAKind Whitney & Chloe's MoM Registered: Aug 2003 Location: Dallas,Texas Posts: 307 Learning Disablilty My daughter is now 17 and she has had 5 surgeries the last one being at the age of 11. My question to all is if any of you that have children in school have any issues of learing disabilities and have you been able to get the school to help. I have had my daughter tested and she is borderline she is a slow at catching on to some subjects and others she picks up just fine. They had her classified as other disability but because she was passing all her classes they will not give her help anymore. Has anyone come across a situation similar to this? Report this post to a moderator | IP: Logged 04-13-2009 02:21 AM

keppem01 Registered: Sep 2007 Location: St. Joseph, MN Posts: 254 Mine are all still little, but I just wanted to say that I used to work in one of the local High Schools with the SPED department and then in a different department doing private tutoring to kids who needed the extra help (they were referred to me by their teachers). Since your daughter is borderline, but you still have concerns, maybe bring that up to her counselor and see if they can get her someone to tutor her everyday. Or maybe you were looking more for a diagnosis or something along that line? Sorry I can't be much help, but the counselor sounds like a good place to start. __________________ Married to wonderful husband, Rukshan, and Mom to two beautiful children: Kanishka: 4-16-2005; Port Wine Stain on right side of face: Four laser treatments done to remove Jayanthi: 7-21-2007; Right Coronal Cranio; CVR/FOA Surgery 11-14-2007; Diagnosed with Muenke Syndrome 11-2007 Report this post to a moderator | IP: Logged 04-13-2009 02:45 PM

sue Registered: Jun 2003 Location: Posts: 50 yes, I have my son diagnosed with learning disabilities. I am still trying to get an IEP, but the school is providing a 504 plan and some accommodations. You have a right to request an independent Evaluation, to identify your child. Do that in writing and keep copies of everything. Check out wrightslaw.com It has great info on Special Education, Rights and the Law. Yes, Learning Disabilities are associated with Craniosynostosis. Let me know if you need more help. Blessings, Sue Report this post to a moderator | IP: Logged 04-18-2009 02:57 PM

mommyof2now Cathy Registered: Aug 2003 Location: OHIO Posts: 218 My son started kindergarten w/ an IEP and I still have to fight w/ the school constantly to get them what he needs I think it is a mater of not that the teachers don't care but hey are so stretched thin they can't do much more then they are. __________________ Emily 07/29/01 angel brother Conner 02/14/02 and Ethan 04/10/03 Metopic cranio( first surgery Feb 2004) MRSA and reaction to plastic had to re open up and removed plastic april 2004, 3rd cranio surg set to take place 6-15-09. Pyloric stinosis, coartation of the aort, bicuspid aortic valve, global deals, SP, PT, OT 11p15.2 microduplication and 16p5.1 microduplication belived to be only the second DX case of SOX6 syndrom. Report this post to a moderator | IP: Logged 04-26-2009 10:30 AM

Max's Mommy Administrator Registered: Jun 2003 Location: Long Island, New York Posts: 2019 Im pretty good with the IDEA Laws so if you need any help - email me. Amy __________________ Join our * Craniosynostosis-Plagiocephaly Page-Cappskids AmyGalm Watch Max's story Watch Max's Journey through surgery Amy Galm President CAPPS Kids 516-232-7015 syddesi2@aol.com mom to Max CVR 6/11/01 Bone graft craniotomy and scar revision 8/14/06 Max dx'd with PDD-NOS/ADHD/CAPD Contact me Syddesi2@aol.com *Find me on Facebook* Also mom to Desiree(18) Sydney(15) and Jack(6) Report this post to a moderator | IP: Logged 04-26-2009 11:07 AM

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