6905 Xandu Court Fredericksburg, VA 22407 CAPPSORG@aol.com

Cappskids Support > Craniosynostosis > Endoscopic Surgery Chat > Endoscopic bone fill in?

Last Thread   Next Thread Author Thread

mjonesy37 Registered: Jan 2006 Location: Posts: 5 Endoscopic bone fill in? My son had an endoscopic cranectomy(?) 4 years ago when he was 3 months old. He recovered beautifully and his head shape is great. Unfortunately, our doctor has found a hole that did not fill in. He has been watching it for 2 years and found that it is growing with our son. Our doctor wants to fill it in using some type of bone growth substance. Not sure if it will be an overnight procedure or outpatient, but they will try to go through the previous incision. I do know that the team that did the original surgery (a pediatric neurosurgeon and a plastic surgeon specializing in cranio-facial surgery) will be working together again. Now that my son is 4, the doctor wants to go ahead and take care of the hole before he gets really active with sports and other activities. My question is, have any of you experienced this, and can you tell me what to expect? You can either post here, or email me at mjonesy37@gmail.com. I am looking forward to hearing from you! Report this post to a moderator | IP: Logged 06-29-2009 10:20 AM

Max's Mommy Administrator Registered: Jun 2003 Location: Long Island, New York Posts: 2019 Ok as far as I know, the bone (apoxy) paste is typically done by endoscope and is not too invasive, HOWEVER if there is a large hole, you may want to look into a bone graft. Studies have come out that bone paste doesnt always give the results the docs want to see. Be sure to ask alot of questions and also research whichever product they intend on using to fill in the gap. Amy __________________ Join our * Craniosynostosis-Plagiocephaly Page-Cappskids AmyGalm Watch Max's story Watch Max's Journey through surgery Amy Galm President CAPPS Kids 516-232-7015 syddesi2@aol.com mom to Max CVR 6/11/01 Bone graft craniotomy and scar revision 8/14/06 Max dx'd with PDD-NOS/ADHD/CAPD Contact me Syddesi2@aol.com *Find me on Facebook* Also mom to Desiree(18) Sydney(15) and Jack(6) Report this post to a moderator | IP: Logged 06-30-2009 10:07 PM

mjonesy37 Registered: Jan 2006 Location: Posts: 5 Thank you! I should be hearing from the neurosurgeon in the next week. I appreciate all feedback! Report this post to a moderator | IP: Logged 06-30-2009 10:34 PM

All times are GMT -5 hours. The time now is 02:29 AM.      Last Thread   Next Thread

Show Printable Version | Email this Page | Subscribe to this Thread Forum Jump: Please select one: -------------------- Private Messages User Control Panel Who's Online Search Forums Forums Home -------------------- Craniosynostosis-- NEW MEMBERS/INTRODUCTIONS-- Family Stories/Blogs/Websites/Videos-- EVERYTHING CRANIO-- Surgery Dates-- SURGICAL TEAM/STATE-- I want to be a SPONSOR-- I would like a sponsor for our upcoming surgery-- Cranio Cuties-- Prayers and well wishes-- Endoscopic Surgery Chat-- Spring Mediated Cranioplasty-- Metopic Suture---- Diagnosed Mild Metopic with no surgery recommended-- Sagittal Suture-- Coronal Suture-- Lambdoid Cranio-- Syndrome Related Cranio---- Crouzon syndrome---- Saethre-Chotzen Syndrome---- Muenke syndrome---- Apert Syndrome---- Jackson-Weiss Syndrome-- Cranio Surgery Help-- Articles and Research studies/clinical trials-- Doctor Question and Answers-- Special Education and Advocacy-- Multi-Sutural Cranio-- Cranio Without Surgery-- Cranio Polls-- Cranio Archives-- THE CHATTER BOX (Off topic) Positional Plagiocephaly-- General Plagio Chat-- Welcome to CAPPS and the Plagio Board-- Band/Helmet Help-- Repositioning Help-- Plagio Insurance Help-- Plagio Polls-- Plagio Archives General Area-- Off Topic Polls Rate This Thread: Select a rating... 5 .. Best 4 3 .. Average 2 1 .. Worst Forum Rules: You may not post new threads You may not post replies You may not post attachments You may not edit your posts HTML code is OFF vB code is ON Smilies are ON [IMG] code is OFF