6905 Xandu Court Fredericksburg, VA 22407 CAPPSORG@aol.com

Cappskids Support > Craniosynostosis > Multi-Sutural Cranio > coronal and lamboid anyone?

Last Thread   Next Thread Author Thread

mrsjoh Registered: Mar 2009 Location: MA Posts: 19 coronal and lamboid anyone? Hello, I am new here. We are having my sons surgery the 18 mar 09. He has cranio of the left coronal and lamboid sutures. The neuro at chboston says he hasn't seen this in his career. Does anyone here have experience with this. They are doing the endoscopic surgery with hopes that it will work, if not we will have the traditional surgery down the road. thanks for the feedback! __________________ Becca mom to Jasper Becca Jasper, born 25 Nov 2008,Congenital Heart Defect: DORV, VSD, PA, D-Tran, gj-tube, trached 12 Feb 09 craniosynostosis, severe laryngealmalaysia www.babyblogs.com/jasper Report this post to a moderator | IP: Logged 03-06-2009 05:25 PM

BOCJ Registered: Feb 2009 Location: Greater Boston Posts: 14 Hi Becca, I keep running into your posts on this site because the cranio issues seem similar to my guys. I have followed your baby blog and was thrilled to hear that you got in for your endo surgery. We had a consult with Proctor and Rogers last week. We will be getting a CT Scan this week that will likely show multiple sutures fused. We know coronal and it is highly likely others. I am eager for the results and the surgery. I am wondering if your son had a blood transfusion? Also I read he couldn't come home because of feeds? Does your son have G tube? Report this post to a moderator | IP: Logged 04-13-2009 10:33 AM

mrsjoh Registered: Mar 2009 Location: MA Posts: 19 hello! we have been busy here sorry being late! how are you, jaspers surgery went great!!! he is doing helmet thereapy now and doesnt mind it at all, his head is shaping up wonderfully thanks ***he has a gtube, was gj, jsut had the fundo surgery on 16 june, now its just g __________________ Becca mom to Jasper Becca Jasper, born 25 Nov 2008,Congenital Heart Defect: DORV, VSD, PA, D-Tran, gj-tube, trached 12 Feb 09 craniosynostosis, severe laryngealmalaysia www.babyblogs.com/jasper Last edited by mrsjoh on 06-18-2009 at 02:45 PM Report this post to a moderator | IP: Logged 06-18-2009 02:40 PM

All times are GMT -5 hours. The time now is 01:41 PM.      Last Thread   Next Thread

Show Printable Version | Email this Page | Subscribe to this Thread Forum Jump: Please select one: -------------------- Private Messages User Control Panel Who's Online Search Forums Forums Home -------------------- Craniosynostosis-- NEW MEMBERS/INTRODUCTIONS-- Family Stories/Blogs/Websites/Videos-- EVERYTHING CRANIO-- Surgery Dates-- SURGICAL TEAM/STATE-- I want to be a SPONSOR-- I would like a sponsor for our upcoming surgery-- Cranio Cuties-- Prayers and well wishes-- Endoscopic Surgery Chat-- Spring Mediated Cranioplasty-- Metopic Suture---- Diagnosed Mild Metopic with no surgery recommended-- Sagittal Suture-- Coronal Suture-- Lambdoid Cranio-- Syndrome Related Cranio---- Crouzon syndrome---- Saethre-Chotzen Syndrome---- Muenke syndrome---- Apert Syndrome---- Jackson-Weiss Syndrome-- Cranio Surgery Help-- Articles and Research studies/clinical trials-- Doctor Question and Answers-- Special Education and Advocacy-- Multi-Sutural Cranio-- Cranio Without Surgery-- Cranio Polls-- Cranio Archives-- THE CHATTER BOX (Off topic) Positional Plagiocephaly-- General Plagio Chat-- Welcome to CAPPS and the Plagio Board-- Band/Helmet Help-- Repositioning Help-- Plagio Insurance Help-- Plagio Polls-- Plagio Archives General Area-- Off Topic Polls   Forum Rules: You may not post new threads You may not post replies You may not post attachments You may not edit your posts HTML code is OFF vB code is ON Smilies are ON [IMG] code is OFF