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6905 Xandu Court Fredericksburg, VA 22407 |
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HELPFUL LINKS
We have put together a list of links that may help you find additional information.
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Support Groups, Organizations and Foundations |
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Let's Face It |
| http://www.faceit.org |
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The Craniofacial Association of Arizona |
| http://www.azcranio.com/ |
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FACES - The National Craniofacial Association |
| http://www.faces-cranio.org |
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KidNeeds.com |
| http://www.KidNeeds.com |
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About Face USA Organization |
| http://www.aboutfaceusa.org/ |
| About Face International |
| www.aboutfaceinternational.org |
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The Friends Health Connection |
| http://friendshealthconnection.org |
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Look Health Fit |
| http://www.lookhealthfit.com/child-health/infant-and-toddlers |
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Positional Plagiocephaly Related Links |
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Cranial Technologies, Creators of the DOC Band and more information on Plagio |
| http://www.cranialtech.com |
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Orthomerica, creators of the STARband |
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UK Support Group |
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A California based DOC band treatment center |
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A petition one of our PlagioMoms put together. This petition is aimed at AAP and is attempting to get them to take notice and act in regard to Positional Plagiocephaly |
| http://www.petitiononline.com/0799/petition.html |
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TorticollisKids - information on Torticollis |
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TorticollisKids Yahoo Group |
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An informational website about Positional Plagiocephaly |
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Early Intervention services for Physical Therapy of Torticollis |
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To locate the Early Intervention Service in your state please visit The National Information Center For Children And Youth with Disabilities website located at http://www.nichcy.org/states.htm click on your state and look for the section entitled "PROGRAMS FOR INFANTS AND TODDLERS WITH DISABILITIES: AGES BIRTH THROUGH --" (it is usually through age 2 or 4 years) Here you will find contact information so you can reach the Early Intervention service in your state. |
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Cranial Technologies Discussion Board |
| http://www.cranialtech.com/cgi-bin/wb1.pl |
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Camp Kazoo - the makers of Boppy products such as the Boppy Noggin Nest and the Boppy Tummy Time Mat |
| http://www.campkazoo.com/ |
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Site run by the UK providers of the STARband (a UK company called Medistox) |
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Cranial Tech's (DOC Band) UK website |
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| Information about Plagio Prevention - They also sell a instructional video |
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http://www.headsupbaby.com/ Two Plagiocephaly sites in Spanish |
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Find your State Insurance Department |
| Click on your state at http://www.naic.org/state_contacts/sid_websites.htm once at your states insurance website, look for information about Health Insurance - or perhaps the Consumer section. Unfortunately these websites are not uniform, so it can take a bit of digging to see if your state offers external appeal/independent review for insurance issues. |
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Slingshot, A Lawyer's Guide To Getting Your Child's Cranial Orthosis Covered By Your Medical Insurance Plan, a book by Ian Doris, a lawyer and PlagioDad |
| http://plagiocoach.com |
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Severity Assessment Forms at Cranial Tech |
| http://www.cranialtech.com/medicalinfo/identifyplagio.html |
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Other Related Links |
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Lorenz Surgical |
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American Medical Association - Doctor finder : Information on virtually every licensed physician in the US. |
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Ronald McDonald House's : Search for Ronald McDonald houses |
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Angel Flight - An organization that helps with transportation for treatment purposes |
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FAQ about cranio : FAQ |
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Disability Resources Monthly (DRM) Guide to Disability Resources on the Internet |
| http://www.disabilityresources.org |
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The Preemie Place: specifically for parents and families seeking information and support throughout each stage of prematurity. |
| www.thepreemieplace.org |
The
information on this website should not be used for medical advice. Medical
or health advice should be provided only by medical or health professionals.
İCraniosynostosis And Positional
Plagiocephaly Support,
Inc.2001