Why Get A Second Opinion?

A second opinion is a valuable resource when you are faced with difficult choices regarding your child’s treatment options. Depending on where you live and your availability for travel, you may have limited access to highly specialized care. CAPPSKIDS.ORG brings all of the condition-specific specialists to you in one place allowing you to receive a 2nd opinion from a known specialist in this particular field.

Does My Health Insurance Cover This Second Opinion?

The CAPPSKIDS.ORG Second Opinion Program is a self-pay program with a minimal fee. Our fees are in place in order to fund the program. There are assistance programs in place so that if you have difficulty making this payment you can contact us to see if you qualify for a free consultation.

Navigating your child's diagnosis of Craniosynostosis

Although this term may sometimes be used in medicine to explain to a family that the synostosis at the time, is not and may not cause any neurological concern, the term cosmetic means just that. At this time it is “cosmetic in nature” try not to get bogged down by the use of this term.

A procedure is cosmetic when intended to change a physical appearance that would be considered within normal human anatomic variation. Cosmetic services are often described as those that are primarily intended to preserve or improve appearance.

Reconstructive surgery is typically performed to improve function, to make a deformity appear more normal, or to alleviate health complications associated with the abnormality.

Craniosynostosis is not cosmetic.

The need for surgery is both for cosmetic and functional reasons. The misshaped skull can lead to body image problems later in life. In some cases, there can be raised ICP. The goal of treatment is to restore normal appearance of the skull and increase the cranial volume so that the growing brain can be accommodated without any pressure. When Craniosynostosis goes uncorrected continued calvarial deformity can lead to abnormalities in the cranial base.

Families often worry when they hear the word “elective” regarding their child’s surgery.

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Is Craniosynostosis Cosmetic?

Craniosynostosis is not cosmetic.

Families often worry when they hear the word “elective” regarding their child’s surgery.