CAPPS — which stands for Craniosynostosis and Positional Plagiocephaly Support (now known as Deformational Plagiocephaly)— is the pioneer and leader in supporting and educating families diagnosed with Craniosynostosis and/or Positional Plagiocephaly.
CAPPS was started by parents — not physicians — who personally experienced the condition.
Parents are the ones who seem to empower the passion to generate organic growth of such organizations, as they develop a passion for other parents not to suffer through scenarios that they have experienced. This is a reflection of a parent’s unconditional love for their children, and the empathy of seeking to help others struggling through the same emotional process.
