Blog Entries

In light of recent events we are running a 7 day free kindness challenge on Facebook in the name of our son who was diagnosed with Crouzon syndrome 1 year ago. Here is a link to our video https://youtu.be/z71hj3MB6Bs if your interested in doing the challenge please add me on facebook look for me at […]
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He is my son Cloud Steven, diagnose with Crouzon syndrome. He is the strongest that i know. I love him so much 🙂
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Dear Doctor,We saw you today to discuss my child’s skull deformity. I appreciate your insight and your ability to answer my questions. I have just one observation that i’d like to discuss with you. You used the word “cosmetic” several times.The word cosmetic may seem reasonable when describing the contour of my child’s head shape […]
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CAPPSKIDS.org had the opportunity to speak with several orthotists last week at an educational program run by Hanger Clinics.With over 1,300+ clinicians, Hanger Clinic provides the greatest collective of clinical talent available anywhere. Specializing in the provision of orthotic and prosthetic solutions, our teams efficiently deliver effective clinical systems, innovative technologies and outstanding customer service […]
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My friend is expecting her first child. People keep asking what she wants. She smiles demurely, shakes her head and gives the answer mothers have given throughout the ages of time. She says it doesn’t matter whether it’s a boy or a girl. She just wants it to have ten fingers and ten toes. Of […]
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At CAPPS we urge families NOT to ask for a CT scan until they have seen a specialist.  There are two(2) good reasons for this: first, the CT scan may be unnecessary and/or the specialist may prefer an MRI or consider physical examination conclusive. Second, if the CT scan is ordered incorrectly there is a […]
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 I felt like I was going crazy. Like my world was falling apart. I know that i’m not alone but it’s hard to find someone else who understands.  My son was born with what I considered an “odd shaped head”.  The nurse told me it was “birth head”.  But this was my 4th child.  I […]
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