Why Get A Second Opinion?

A second opinion is a valuable resource when you are faced with difficult choices regarding your child’s treatment options. Depending on where you live and your availability for travel, you may have limited access to highly specialized care. CAPPSKIDS.ORG brings all of the condition-specific specialists to you in one place allowing you to receive a 2nd opinion from a known specialist in this particular field.

Does My Health Insurance Cover This Second Opinion?

The CAPPSKIDS.ORG Second Opinion Program is a self-pay program with a minimal fee. Our fees are in place in order to fund the program. There are assistance programs in place so that if you have difficulty making this payment you can contact us to see if you qualify for a free consultation.

UVA Health Children’s Craniofacial Center

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UVA Health Battle Building
1204 W Main Street
Charlottesville, VA 22903

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Phone:434-243-5749 option 1, option 4

Meet the team

Jonathan Black, MD
Amanda Hendrix, AC-PNP
Heather Spader, MD
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About
Craniosynostosis Treatments

For more than 3 decades, UVA Health Children’s has been an international leader in treating craniosynostosis. Our complex craniofacial team’s expertise has led to our hospital being a recognized Craniofacial Center of Excellence. We perform more craniosynostosis surgeries than any other center in Virginia.

When it comes to diagnosing and treating craniosynostosis, we have the best record and the most experience. Not only can we provide the full spectrum of care, but we also provide support services. These services make sure your baby stays on track developmentally.

For those traveling a long way, we offer telehealth follow-up and initial visits. We also work with therapeutic centers around the state for cranial helmets. That means we can help you find a center near home.

The best treatment for your child depends on a lot of factors. At your first appointment, you’ll sit down with our team. We’ll talk through which option will work best for your child’s individual situation and what’s right for your family. At that time, the craniofacial team may recommend imaging to confirm a diagnosis.

Minimally Invasive Surgery

We offer endoscopic surgery for babies younger than 4 months. In most cases, babies only need to stay in the hospital for a single night. Unlike many other procedures, this procedure does not typically require additional surgeries. After this surgery, your babies will wear a helmet for 6-9 months.

Helmet for Craniosynostosis

Wearing a helmet is part of endoscopic surgery. We can fit your baby for a helmet in our orthotics department or coordinate with a provider closer to your home. The helmet offers protection and helps with your baby’s head shape.

Spring-Assisted Craniosynostosis Surgery

If your baby is between 4-6 months, we typically recommend a spring-assisted surgical repair. We replace the piece of fused bone we remove with a cranial spring. The spring helps your baby’s head reshape as it continues to grow.

After the surgery, your baby will only need to stay in the hospital for 1-2 days. They also won’t need to wear a helmet.

In a few months, we’ll remove the spring. This procedure is very short, and recovery is even faster than the first surgery.

Cranial Vaulting

UVA Health Children’s pioneered cranial vaulting, the gold standard of craniosynostosis care, in the 1970s and we’ve continued to improve it over time. This surgery is generally done for severe cases of craniosynostosis in babies that are 8-9 months old.

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