Hi there. I’m Harrison and this is my journey through reconstructive surgery for Metopic synostosis. This started back in November of 2012 at my 2 month checkup. The doc said we’d re-evaluate at 4 months. In January he referred us to the first specialist. He confirmed what my pediatrician feared and that is that I have craniosynostosis. There are multiple types of this disease, where the sutures in the skull (the joints) fuse together before they should. I have Metopic Synostosis which is one of the more rare forms and consists of the fusion of the joint running down through the middle of the forehead (think of the ridge on a Klingon’s forehead). Fused together too soon in life and a child ends up with a narrow forehead that will not grow with the brain. This can cause pressure buildup which can lead to diminished motor skills and speech, learning disabilities and even blindness.
Mine was fused before I was 2 months old when it was first noticed. They normally begin to fuse around 6-8 months. http://www.riversideonline.com/source/images/image_popup/ans7_bonyplates.jpg The only corrective action is surgery. Surgery involves a zigzag incision ear to ear, the scalp is brought down over the front of the face (the doc says just like in the movie Face-Off) and the forehead is cut out in two halves, re-shaped by greenstick fracturing and replaced with clearance gaps. The halves are sutured in relative position and the body forms new bone in the gaps over the next couple of months. The optimum time to do this procedure is between 4-6 months of age. I will be 6.5 months by the date of surgery. Waiting too long can increase the chances of follow-up surgeries. Mom and Dad took me to several places so lots of doctors could hold me and tell them how handsome I am.
However, they all agreed that surgery is the only fix. The surgery is about 4 hours long and 3-4 days in the hospital. There will be lots of swelling and bruising and my eyes may be swelled shut for a couple days. Surgery is scheduled for: April 4th, 2013 at 12:30 PM Please pray for me and all of the doctors and nurses that I’ll meet. And don’t forget to say some extra prayers for my mommy and daddy. Truth be told, they aren’t taking it too well. But they say they have Faith, and that’s all they need. They keep talking about Ecclesiastes 4:9-12, Isiah 41:10, 1 Samuel 1:27 and Philippians 4:6-7 and 13. Stay tuned.