Stories

Leigha was not born the little girl I had envisioned in my dreams. The elation that I felt upon the announcement “It’s A Girl” was quickly overshadowed. I was robbed of normal motherhood delights by our family practitioner puzzling over her looks, and I was confused by a quick explanation that her features resembled those […]
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Valerie was born at 36 weeks . I had a very normal pregnancy. Her tummy was destended at birth and at her 1 mth check up we found out she was constipated. at 5 weeks old Valerie had hearrt surgery and at 41/2 mths old she went in to have surgery for sagittal cranio reconstruction. […]
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At Alyssa’s routine 2 month well baby visit on April 29, 2003, the doctor noticed that her head had a flattening on the back right side. It was nothing totally abnormal we were told, just probably because she preferred to hold her head to the right side. They called this torticollis, or a shortened neck […]
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(I’m not located in the USA, I am from Canada, but I still wanted to share my little girls’ story) I got pregnant with my now five-year-old daughter, Evangeline, at the age of 16. She was brought into this world on May 12, 2007 via emergency c-section, due to the large size of her head, […]
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When Hannah was born the Dr. told us they needed to keep a close eye on Hannah’s head and the shape. They hoped, things would change in a month from when she was born. When we took Hannah for her 1 month check-up, we were faced with the devastating news about Hannah and Craniosynostosis. Below […]
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My name is Amy and our 4th son Avery was diagnosed with right Lambdoid Synostosis at 7 months of age. Our amazing neurosurgeon Dr. Eric Trumble (neurosurgeons4kids.com) performed a endoscopic strip craniectomy with barrel staving on December 18, 2012 at Florida Hospital Orlando. He is currently wearing his molding band and is doing fantastic! I […]
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