Stories

Hudson and his twin brother Parker Allen were born @ 28 weeks. Hudson was 1 lb and Parker was 2 lbs. Hudson was diagnosed in August of 2007 at 9 months. We have been told he had both Metopic & sagittal closures. He has had two reconstructive surgeries. (We have not gone ahead with the […]
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My identical twin boys arrived into the world at only 34 weeks on the 6th November 2008 so they had to spend there first 4 weeks of their new life in the HDU. Thankfully we got them home before christmas and everything was great until Brandon the youngest twin started having problems trying to hold […]
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My daughter, Machaela, was born on Groundhog Day in 2007. She was diagnosed with Craniosynostosis on the 2nd day, needless to say, my family and I were very confused because we’d never heard of it. I remember the specialist coming into talk to me and my parents. She explained that Machaela had cranio and that […]
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Jesse’s Story Jesse is our miracle. He was conceived via IVF and even with IVF our chances were only about 15-20%. When he was born, he had a bit of a rough start. Jesse had fluid in his lungs and then developed severe jaundice, so he spent the first 6 days of his life in […]
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My daughter’s story starts when I was just 12 weeks pregnant with her. I went for my routine 1st trimester screening, and was told that my amniotic sac was too small and there wasn’t enough room for the baby. They told me to go home and wait for a miscarriage, there was nothing I could […]
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Here is our story My daughter, Bryndal Franklin, was born on July 5, 2011. She is an only child. My husband and I began this journey during my 20 week gestational appointment. We were told that they could not find my daughters cerebellum and referred us to a specialist. The specialist found the cerebellum, but […]
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