Stories

Every 1 in 2,000 births a baby is born with Craniosynostosis. On November 30th, 2011 at 3:51 pm, my daughter became that one. In the moment she was born I couldn’t have even imagined the road our lives would take over the next several months. It became pretty clear, within the first 2 months of […]
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Thu 09, Jan 2014 On January 28th 2013 we welcomed our third child into the world. She was simply beautiful. We fell in love instantly and her big brother and sister adored her from the start. Within a few weeks after bringing her home, I started to notice that her forehead looked a little odd […]
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This is Aspen, she was born on February 23, 2013. She is my first child- and will be an only child for a long time considered I am a single mom. It was a long delivery that ended up in c-section for failure to descend, however after way too many hours of labor she was […]
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Jesse’s Story Jesse is our miracle. He was conceived via IVF and even with IVF our chances were only about 15-20%. When he was born, he had a bit of a rough start. Jesse had fluid in his lungs and then developed severe jaundice, so he spent the first 6 days of his life in […]
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When I was a kid, I thought I was normal. I looked in the mirror and saw myself and saw beautiful blonde hair and brown eyes, I loved my weight and my rosey cheeks. It wasn’t until middle school, when I started to get bullied, that I found out I looked different. I was born […]
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Adam was born on Monday, January 20, 2014 with a normal pregnancy and delivery. As soon as he was born you could tell his head was not normal it was elongated and narrow with a point out the back and a ridge on the top of his skull. By the time the hospital pediatricians saw […]
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