Hi, I’m Patrick! I was diagnosed with craniosynostosis at my 4 month check up. I had endoscopic surgery in NYC on May 1st 2009. Then I wore my helmet “Mr. Helmie” for a year after. Now, I’m 5 and live Kansas City with my mom, dad and 3 big sisters.

My mommy, Jill is currently Mrs. Missouri International and is using that title to spread awareness about Craniosynostosis. She’s writing a kids’ book about it.