News Entries

Dear Parents,As your child’s healthcare advocate and voice, it is important that you maintain your child’s health care records.Time and time again we see families struggle to gather up what they need, when they need it.  It may be a scan from 2006, or an MRI from 2010.  What exactly did that report say?  Can […]

Neurodevelopmental Problems in Non-Syndromic CraniosynostosisPredictors of Preoperative Developmental Delay in Nonsyndromic Sagittal CraniosynostosisThe preoperative incidence of raised intracranial pressure in nonsyndromic sagittal craniosynostosis is underestimated in the literature 

When we are asked to observe at a Craniofacial Clinic, we jump at that opportunity.  Having the ability to ask the questions that so many parents are asking, and having these in person, in depth conversations are vitally important to the development of the future care and treatment for all of our children.We were honored […]

Cappskids.org is excited to announce our next webinar in the cappskids series: Minimally Invasive Craniosynostosis SurgeryTopics covered will include:Why minimally invasive?What are the benefits of minimally invasiveHow old is too old?Who is NOT a good candidate for minimally invasive?Are all minimally invasive procedures for Craniosynostosis done the same way?What is recovery like for minimally invasive?How long […]

When my son Michael was very young – just a month old – I noticed the shape of his head was not normal. The rear, right-side of his head appeared to be flat.I mentioned my concerns to his pediatrician who seemed unbothered by his appearance. She suggested I rotate him from side-to-side, which she said […]

ClinicalTrials.gov Identifier:NCT00106977This study will explore the range and type of medical and developmental problems in patients with Muenke syndrome, a condition that results when one or more of the suture between the bones of the skull close before birth. Because of the premature closure, the skull is not able to grow in its natural shape; […]

Washington: Scientists have for the first time identified stem cells capable of repairing skull and face bones in mice, an advance that may lead to new stem-cell therapies for craniofacial bone repair in future.According to Wei Hsu, professor at the University of Rochester Medical Centre in US, the goal is to better understand and find […]

What are RICKETS?Rickets is a skeletal disorder that results from a lack of vitamin D, calcium, or phosphate. These nutrients are important for the development of strong, healthy bones. People with rickets can have weak and soft bones, stunted growth, and, in severe cases, skeletal deformities.Hypophosphatemic rickets is a form of rickets that is characterized […]

A toddler born with a rare defect has made an incredible recovery after surgeons were forced to break open her skull and piece it back together.Grace Turner-Williams was born with craniosynostosis – a condition which causes the skull plates to fuse together in the womb. It caused Grace’s head to grow long and narrow and could […]

Ever see a baby with a helmet on his head throughout the day? Ever wondered if it is for physical or mental health condition? Should it bother you if your doctor tells you that your baby needs a helmet?Plagiocephaly, also known as flat head syndrome, is a condition where a baby’s head is misshapen or […]