News Entries

Dear Parents,Craniosynostosis can be a difficult road to navigate.  It also requires follow up throughout childhood. You may relocate, change medical insurance or have additional questions.As your child’s healthcare advocate and voice, it is important that you maintain your child’s health care records.Time and time again we see families struggle to gather up what they […]

Neurodevelopmental Problems in Non-Syndromic CraniosynostosisPredictors of Preoperative Developmental Delay in Nonsyndromic Sagittal CraniosynostosisThe preoperative incidence of raised intracranial pressure in nonsyndromic sagittal craniosynostosis is underestimated in the literature 

When we are asked to observe at a Craniofacial Clinic, we jump at that opportunity.  Having the ability to ask the questions that so many parents are asking, and having these in person, in depth conversations are vitally important to the development of the future care and treatment for all of our children.We were honored […]

Cappskids.org is excited to announce our next webinar in the cappskids series: Minimally Invasive Craniosynostosis SurgeryTopics covered will include:Why minimally invasive?What are the benefits of minimally invasiveHow old is too old?Who is NOT a good candidate for minimally invasive?Are all minimally invasive procedures for Craniosynostosis done the same way?What is recovery like for minimally invasive?How long […]

When my son Michael was very young – just a month old – I noticed the shape of his head was not normal. The rear, right-side of his head appeared to be flat.I mentioned my concerns to his pediatrician who seemed unbothered by his appearance. She suggested I rotate him from side-to-side, which she said […]

ClinicalTrials.gov Identifier:NCT00106977This study will explore the range and type of medical and developmental problems in patients with Muenke syndrome, a condition that results when one or more of the suture between the bones of the skull close before birth. Because of the premature closure, the skull is not able to grow in its natural shape; […]