CAPPS observing Craniofacial “Head Shape Clinics”

When we are asked to observe at a Craniofacial Clinic, we jump at that opportunity.  Having the ability to ask the questions that so many parents are asking, and having these in person, in depth conversations are vitally important to the development of the future care and treatment for all of our children.

We were honored to attend clinic in Westchester, NY this week where we met Dr. Jordan Jacobs.

Dr. Jacobs is Chief of the Cleft and Craniofacial Teams at Maria Ferari Children’s Hospital. He is an Assistant Professor of Plastic Surgery at the Icahn School of Medicine at Mount Sinai Hospital. He has been an international volunteer for several years, most recently performing reconstructive surgery on children in Honduras as part of the World Pediatric Project.

We also met with Michael Tobias, MD and Avinash Mohan, MD, Pediatric Neurosurgeons.

Dr.Tobias received both his undergraduate degree with honors and his medical degree with honors in neurosurgery and pediatric neurosurgery from Brown University. He completed his internship and residency in neurosurgery at Albert Einstein College of Medicine, the Bronx, where he participated in the establishment of a new educational curriculum for resident training in pediatric neurosurgery. He then trained as a pediatric neurosurgery fellow at LeBonheur Children’s Medical Center and St. Jude Children’s Research Hospital, in the Department of Neurosurgery, University of Tennessee, Memphis. Tobias also has co-authored multiple academic publications.

Dr. Mohan received his undergraduate degree with honors from The Johns Hopkins University and his medical degree from Case Western Reserve University. He completed his internship and residency in neurosurgery at New York Medical College, during which time he served for one year as a Research Fellow at the Skirball Research Institute, New York University School of Medicine. He then did his fellowship in pediatric neurosurgery at Children’s Memorial Hospital, Northwestern University Feinberg School of Medicine, Chicago. Mohan has co-authored numerous academic publications.

We enjoyed meeting some families and observing the patient flow of this clinic model.  What we found interesting is that this team will come together to meet new patients in office, speak with them, determine what if any other necessary testing is needed and even have the baby with Deformational Plagiocephaly scanned for a Cranial Helmet right there in clinic by Monroe Orthotics CPO, George Tanner using the Starscanner.

We spoke at great length about their love for treating these conditions, their data collection and the need for better post-operative follow up care.  We were impressed that the clinic uses neuropsychological testing as part of their follow up treatment plan.  This team uses TXA: Tranexamic Acid Reduces Blood Loss in Craniofacial Surgery.

This team has great experience in treating the children using the minimally invasive technique.  It is important to note that they specialize and trained with some of the most active Craniosynostosis surgeons in the country which may contribute to their combined passion.

The team uses the minimally invasive Cranial Vault Remodel technique.  This technique is used by some of our centers and involves making multiple cuts to the skull while using a very small incision.  We had the opportunity to view a post op zig-zag incision on a very young toddler and it was virtually undetectable on his little head.  We enjoyed listening to the team speak of how they always work collaboratively with the team approach even when they use the minimally invasive technique.  Dr. Mohan made us laugh when he said, “If it were my child, I would prefer a Plastic surgeon to do the incision even if it is small.”

The team is currently using their “clinic model” in Tarrytown once per month but intend on establishing a larger in hospital model on the West Side of NYC in the near future.

The team is more than happy to expedite our families at our request, so that every child may have the opportunity for whichever technique might be available to them.

Their dedication to and attentiveness to our concerns made this a very pleasant and exciting experience.  The team has a great deal of experience with Chiari Malformation, Hydrocephalus and Craniofacial Syndromes.  We are excited to see the clinic as it evolves.

For more information about this team, contact us at info@cappskids.org


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